Connie Culp, who underwent the groundbreaking procedure in December after her husband shot her four years earlier, praises the medical staff that made her new face possible.
Cleveland -- Five years ago, a shotgun blast left a ghastly hole where the middle of her face had been. Five months ago, she received a new face from a dead woman.
Connie Culp stepped forward Tuesday to show off the results of the nation's first face transplant, and her new look was a far cry from the puckered, noseless sight that made children run away in horror.
Culp's expressions are still a bit wooden, but she can talk, smile, smell and taste her food again. Her speech is at times a little tough to understand. Her face is bloated and squarish, and her skin droops in big folds that doctors plan to pare away as her circulation improves and her nerves grow, animating her new muscles.
But Culp, a 46-year-old from Unionport, Ohio, had nothing but praise for those who made her new face possible.
"I guess I'm the one you came to see today," she said at a news conference at the Cleveland Clinic, where the groundbreaking operation was performed. But "I think it's more important that you focus on the donor family that made it so I could have this person's face."
But Culp, a 46-year-old from Unionport, Ohio, had nothing but praise for those who made her new face possible.
"I guess I'm the one you came to see today," she said at a news conference at the Cleveland Clinic, where the groundbreaking operation was performed. But "I think it's more important that you focus on the donor family that made it so I could have this person's face."
Until Tuesday, Culp's identity and how she came to be disfigured were a secret.
Culp's husband, Thomas, shot her in 2004, then turned the gun on himself. He survived, and was sent to prison for seven years. His wife was left clinging to life. The blast shattered her nose, cheeks, the roof of her mouth and an eye. Hundreds of fragments of shotgun pellet and bone splinters were embedded in her face. She needed a tube into her windpipe to breathe. Only her upper eyelids, forehead, lower lip and chin were left.
A plastic surgeon at the Cleveland Clinic, Dr. Risal Djohan, got a look at her injuries two months later. "He told me he didn't think, he wasn't sure, if he could fix me, but he'd try," Culp recalled.
She endured 30 operations to try to repair her face. Doctors took parts of her ribs to make cheekbones and fashioned an upper jaw from one of her leg bones. She had countless skin grafts from her thighs. Still, she was left unable to eat solid food, breathe on her own, or smell.
Then, on Dec. 10, in a 22-hour operation, Dr. Maria Siemionow led a team of doctors who replaced 80% of Culp's face with bone, muscles, nerves, skin and blood vessels from a woman who had just died. It was the fourth face transplant in the world, though the others were not as extensive.
"Here I am, five years later. He did what he said -- I got me my nose," Culp said of Djohan, laughing.
In January, she was able to eat pizza, chicken and hamburgers for the first time in years. She loves to have cookies with a cup of coffee, Siemionow said.
No information has been released about the donor or how she died, but her family members were moved when they saw before-and-after pictures of Culp, Siemionow said.
Culp said she wanted to help foster acceptance of those who have suffered burns and other disfiguring injuries.
"When somebody has a disfigurement and don't look as pretty as you do, don't judge them, because you never know what happened to them," she said. "Don't judge people who don't look the same as you do. Because you never know. One day it might be all taken away."
It's a role she has already practiced, said Dr. Kathy Coffman, the clinic psychiatrist.
Once while shopping, "she heard a little kid say, 'You said there were no real monsters, Mommy, and there's one right there,' " Coffman said. Culp stopped and said, "I'm not a monster. I'm a person who was shot," and pulled out her driver's license to show the child what she used to look like, the psychiatrist said.
Culp told her doctors she just wanted to blend back into society in Unionport, a small town near the Pennsylvania line. She has a son and a daughter who live near her, and two preschool grandsons.
The clinic expects to absorb the cost of the transplant because it was experimental, doctors said. Siemionow estimated it to be $250,000 to $300,000. That is relatively inexpensive, considering that other surgeons estimate it costs them $1 million to treat severely disfigured people with dozens of separate operations, she said.
Culp's husband, Thomas, shot her in 2004, then turned the gun on himself. He survived, and was sent to prison for seven years. His wife was left clinging to life. The blast shattered her nose, cheeks, the roof of her mouth and an eye. Hundreds of fragments of shotgun pellet and bone splinters were embedded in her face. She needed a tube into her windpipe to breathe. Only her upper eyelids, forehead, lower lip and chin were left.
A plastic surgeon at the Cleveland Clinic, Dr. Risal Djohan, got a look at her injuries two months later. "He told me he didn't think, he wasn't sure, if he could fix me, but he'd try," Culp recalled.
She endured 30 operations to try to repair her face. Doctors took parts of her ribs to make cheekbones and fashioned an upper jaw from one of her leg bones. She had countless skin grafts from her thighs. Still, she was left unable to eat solid food, breathe on her own, or smell.
Then, on Dec. 10, in a 22-hour operation, Dr. Maria Siemionow led a team of doctors who replaced 80% of Culp's face with bone, muscles, nerves, skin and blood vessels from a woman who had just died. It was the fourth face transplant in the world, though the others were not as extensive.
"Here I am, five years later. He did what he said -- I got me my nose," Culp said of Djohan, laughing.
In January, she was able to eat pizza, chicken and hamburgers for the first time in years. She loves to have cookies with a cup of coffee, Siemionow said.
No information has been released about the donor or how she died, but her family members were moved when they saw before-and-after pictures of Culp, Siemionow said.
Culp said she wanted to help foster acceptance of those who have suffered burns and other disfiguring injuries.
"When somebody has a disfigurement and don't look as pretty as you do, don't judge them, because you never know what happened to them," she said. "Don't judge people who don't look the same as you do. Because you never know. One day it might be all taken away."
It's a role she has already practiced, said Dr. Kathy Coffman, the clinic psychiatrist.
Once while shopping, "she heard a little kid say, 'You said there were no real monsters, Mommy, and there's one right there,' " Coffman said. Culp stopped and said, "I'm not a monster. I'm a person who was shot," and pulled out her driver's license to show the child what she used to look like, the psychiatrist said.
Culp told her doctors she just wanted to blend back into society in Unionport, a small town near the Pennsylvania line. She has a son and a daughter who live near her, and two preschool grandsons.
The clinic expects to absorb the cost of the transplant because it was experimental, doctors said. Siemionow estimated it to be $250,000 to $300,000. That is relatively inexpensive, considering that other surgeons estimate it costs them $1 million to treat severely disfigured people with dozens of separate operations, she said.
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